This conference included science and family tracks and was a time for us to come together to develop an updated patient-centered research agenda. The second day of the conference was be a hybrid event.
An outcome of this conference was TESS Research Foundation developing an Organizational Roadmap to build capacity for patient-centered clinical comparative effectiveness research for SLC13A5 Epilepsy.
Read our conference recap blog post here.
This conference is funded in part by PCORI and the Doyle Foundation.
Grants and Sponsorships
