TESS offers a variety of educational webinars and videos to help caregivers and families navigate a SLC13A5 Epilepsy diagnosis. Listen at your convenience to practical advice on diagnosis, clinical care, current research, caregiver challenges, and more.
TESS Research Foundation Founder, Kim Nye, is a thought leader in rare gene therapy development. She is frequently invited to give both public and private presentations to the government, nonprofits, and industry on rare disease and epilepsy diagnosis, starting a nonprofit, clinical trial design, and life as a caregiver to two children with disabilities. If you are interested in having Kim speak to your team, you can email her: firstname.lastname@example.org.