Get Involved

We’re proud to be a part of a tight-knit and active community. All we’re missing is you! Check out the various ways to get involved with TESS Research Foundation. Choose the ones that are right for you.

Get Connected

There are so many ways to get connected to TESS and our community. Introduce yourself and your journey to Kim Nye (TESS Founder and parent). We will send you a welcome packet and TESS schwag!

Participate in Research
Help researchers understand SLC13A5 Epilepsy, improve treatments, and find a cure. Join the registry and Natural History Study. Get your Citrate Level Tested. To contribute specimens to the BioBank, contact Tanya (TESS Scientific Director).

Sign up for Communications
Subscribe to our monthly electronic newsletter, join our private Facebook group, and check out our blog. Never miss new information, stories, and news.

Follow us on Social Media
Share our posts to raise awareness of SLC13A5 Epilepsy.

Participate in Upcoming Events.
Attend our monthly virtual happy hours and sibling support groups, educational webinars, and bi-annual family conferences.

Raise Awareness

We need your voice to help increase knowledge about SLC13A5 Epilepsy with the public as well as medical and other health professionals.

Share Your Story
Every month we feature a superhero. Also, we celebrate birthdays, share sibling interviews, and capture a day in the life of SLC13A5 families. Contact Nicole (US Family Outreach Coordinator) to share yours!

Celebrate International SLC13A5 Epilepsy Awareness Day
Celebrate International Awareness day May 13 and throughout the year.

Download the TESS sign. Post a photo of your TESS loved one to our social media channels.

Share Skills

Contribute your time and talent to help drive our mission forward.

We love our volunteers! Do you have marketing, design, grant writing, event planning, fundraising, accounting, drug development, or legal experience? Contact!

Discover Jobs
We’re looking for people with a relentless passion for our mission to join our team. Contact for current openings.