We’re proud to be a part of a tight-knit and active community. All we’re missing is you! Check out the various ways to get involved with TESS Research Foundation. Choose the ones that are right for you.
Get Involved
Donate & Fundraise
You are powering TESS, and we can’t do it without you. 100% of your donations fund critical SLC13A5 Epilepsy research. Make a single or recurring donation here. See if your workplace offers matching donations. In addition to donating, there are many ways to raise funds to power our mission.
Organize a Fundraiser
Celebrate birthdays, anniversaries, and other milestone — or everyday — events. Set up a Facebook Fundraiser to benefit TESS.
Shop for a Cause
Order TESS ornaments, mugs and more from “Alexa, Make Me Something”; cards and stationary from Minted (code: FUNDRAISETESSFUND); order a gift through our curated TESS Gift Guide; and t-shirts, hoodies, and mugs from Bonfire (I 💜 Rare Research, RARE, TESS Strong, Hustle, Commit, and Never Quit, Superhero Strong, Get Sh*t Done mug). Proceeds support research.
Plan an Event
Become a TESS Champion and plan a lemonade stand, golf tournament, car wash, art night, walk, or gala. Please obtain written permission to use TESS’ logo and name prior to organizing your event. Contact Lindsay (TESS Development Director) to get started.
Become a Derby Day Sponsor
Our Annual Derby Day Fundraiser benefiting TESS Research Foundation takes place each year on the same day as the Kentucky Derby at a private garden in Atherton, CA. Guests include business, medical, scientific, and community leaders, and TESS families. The event features family speakers, a live auction and fund-a-future paddle raise, a children’s area, and a live viewing of the Kentucky Derby. All proceeds from the event fund SLC13A5 research and family support programs. We just held our 3rd Annual Derby Day on May 4, 2024. If you would like to be a sponsor for a future event, click here to read more or please contact Lindsay (TESS Development Director).
Get Connected
There are so many ways to get connected to TESS and our community. Introduce yourself and your journey to Kim Nye (TESS Founder and parent). We will send you a welcome packet and TESS schwag!
Participate in Research
Help researchers understand SLC13A5 Epilepsy, improve treatments, and find a cure. Join the registry and Natural History Study. Get your Citrate Level Tested. To contribute specimens to the BioBank, contact Tanya (TESS Scientific Director).
Sign up for Communications
Subscribe to our monthly electronic newsletter, join our private Facebook group, and check out our blog. Never miss new information, stories, and news.
Follow us on Social Media
Share our posts to raise awareness of SLC13A5 Epilepsy.
Participate in Upcoming Events.
Attend our monthly virtual happy hours and sibling support groups, educational webinars, and bi-annual family conferences.
Raise Awareness
We need your voice to help increase knowledge about SLC13A5 Epilepsy with the public as well as medical and other health professionals.
Share Your Story
Every month we feature a superhero. Also, we celebrate birthdays, share sibling interviews, and capture a day in the life of SLC13A5 families. Contact Nicole (US Family Outreach Coordinator) to share yours!
Celebrate International SLC13A5 Epilepsy Awareness Day
Celebrate International Awareness day May 13 and throughout the year.
Download the TESS sign. Post a photo of your TESS loved one to our social media channels.