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Living With Slc13a5 Epilepsy

SLC13A5 Epilepsy is a complex diagnosis. To ensure you and your loved one are living your best lives with an SLC13A5 Epilepsy diagnosis, we have compiled a list of tips for finding the best care, managing seizures, managing other non-seizure symptoms, and everything else we wish we had known after receiving a diagnosis.

Many of our tips have been informed by lived experience, as well as by discussions in our monthly family support meetings and in our private family Facebook group. This information is constantly evolving and we always welcome learning about additional resources. If you have any resources that you would recommend, please send them to info@tessfoundation.org.

Find the Best Care

SLC13A5 Epilepsy is Complex. An experienced multi-disciplinary team will ensure access to the best care and intervention.

Manage Seizures

Understand currently available strategies for managing seizures including anti-seizure medication, diet, surgery, and other interventions.

Care for Other Symptoms

Beyond seizures, SLC13A5 Epilepsy may impact language, movement, and more. Learn about interventions for other non-seizure symptoms.

Wish We Had Known

Some of our loved ones have been living with SLC13A5 Epilepsy for over a decade.