Our Mission
TESS Research Foundation drives cutting-edge research to diagnose, treat, and ultimately cure SLC13A5 Epilepsy, and provides support for affected children and their families.
Press Room
Boilerplate
TESS Research Foundation is determined to improve the lives of those affected by SLC13A5 Epilepsy. We do this by funding research, spreading awareness, and supporting children with SLC13A5 Epilepsy and their families.
Since 2015, we have gone from identifying the gene responsible for SLC13A5 Epilepsy to a gene therapy in preclinical development. We have awarded more than $2 million in research grants and are connecting a global community of scientists. We do this across countries because SLC13A5 Epilepsy does not know geographic boundaries. We do this collaboratively because it takes a team to improve treatments and find a cure. We do this with urgency because our loved ones are sick now.
We will have succeeded when all children with SLC13A5 Epilepsy can live healthy and independent lives.
Media Inquiries
For all media inquiries: kim@tessfoundation.org
For all non-media inquiries: info@tessfoundation.org
Logos
In the News
2023
2018
Climate Online Redwood City – Rare Disease Diagnosis Creates a Mission for Local Mom
Stanford Medicine Children’s Health – Tessa’s Mystery Condition gets a Diagnosis
2017
The Almanac – Cover Story: Facing the Unthinkable
2016
Epilepsy Foundation Northern California Newsletter
Stanford Medicine Magazine: Breaking The Code: Inside The Search For A Diagnosis
2015
Beyond the Ion Channel: The ILAE Genetics Commission Blog
2014