The diagnosis was a bit further ‘down the line’ but we knew he was a sick baby. What did the diagnosis mean? What was his future? Would he walk; talk; go to school; grow up;...
César is a SLC13A5 Superhero. Here are a few fun facts César's family shared with us! Name: César Age: 1 Home country: Spain César is a child who is always laughing out loud! He loves toys with music and lights. Lamps...
My connection to TESS Research is deeply personal. SLC13A5 Epilepsy is a rare disease that directly affects my family, particularly my lovely niece, Tessa, and nephew, Colton. Their sweetness and warmth melt my heart every...
What Is the Blood-Brain Barrier? Our brains are the most complex organs that we have. Our brains perform functions that impact every single thing that goes on inside our bodies during the entirety of our lives,...
Losing a loved one is an emotional journey that often leaves us feeling lost. We are hoping the below resources provide our community with the tools needed to help navigate this difficult journey. This is not...
TESS Research Foundation has been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support developing a patient-centered...
Mariam is a SLC13A5 Superhero. Here are a few fun facts Mariam's family shared with us! Name: Mariam Age: 33 Home country: Lebanon Mariam likes to help out with select household chores! She enjoys hanging wet clothes on the...
We are deeply saddened to share the news of the loss of our beautiful TESS Superhero, Hailey, daughter to Stéphanie and Christopher, from Hawkesbury, Ontario, Canada. Hailey passed away due to complications from SLC13A5 Epilepsy...
During this past May, I was fortunate to travel from Dallas to Los Angeles for the 26th American Society for Gene and Cell Therapy (ASGCT) annual meeting. This meeting presented the opportunity for me to...