Toll of Caregiver Trauma
Eileen Devine, LCSW
Parents of children with chronic illnesses or disabilities are at a higher risk of parenting stress. Caregiving can put a physical and emotional strain on parents, and can even stress neurotypical siblings and extended relations. Taking care of a child with a drug-resistant epilepsy, such as SLC13A5 Epilepsy, is a high risk factor for parenting stress.
We are proud to have joined with several other rare epilepsy organizations (including The Brain Recovery Project, Hope for Hypothalmic Hamartomas, Ring14USA, Phelan-McDermid Syndrome Foundation, Dup15qAlliance, and LGS Foundation) to present a three part series on the toll of caregiver trauma, as it is experienced by the parents of children with medical issues, with advice on how to manage that trauma.
While the webinars are not substitutes for professional counseling, we hope that watching them will lead to more discussions about caregiver stress.
Read Eileen’s blog about parenting children with neurological challenges here.