09 Aug TESS Research Foundation Approved on a $250,000 PCORI Engagement Award for Project on Developing a Patient-Centered SLC13A5 Research Agenda
TESS Research Foundation has been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support developing a patient-centered SLC13A5 research agenda.
Dr. Tanya Brown, PhD, Scientific Director at TESS Research Foundation and Project Lead, comments that “the SLC13A5 research landscape has changed dramatically over the past 8 years. Now that there are additional research models, tools, and community, this engagement award will allow us to develop an updated research agenda to guide us for the next 5-10 years. This is also a fantastic opportunity to bring the SLC13A5 community together to develop a research agenda to drive us towards new therapies for SLC13A5 Epilepsy.”
Through the Engagement Awards, PCORI is creating an expansive network of individuals, communities and organizations interested in and able to participate in, share, and use patient-centered comparative clinical effectiveness research (CER). TESS Research Foundation was one of several organizations awarded funding under a new Engagement Award funding opportunity focused on supporting small organizations, in particular those that may not have any prior experience with patient-centered CER, to build their capacity to participate in this research. PCORI will support recipients with technical assistance and learning network activities across their project period.
“Small organizations offer unique perspectives and capabilities as partners in comparative clinical effectiveness research,” said Greg Martin, PCORI’s chief of engagement, dissemination, and implementation. “We look forward to supporting TESS Research Foundation in their activities and their exploration of ways to contribute to future CER.”
TESS Research Foundation’s project and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI’s engagement goals and objectives, as well as program criteria. For more information about PCORI’s funding to support engagement efforts, visit http://www.pcori.org/content/eugene-washington-pcori-engagement-awards/.
PCORI is an independent, nonprofit organization authorized by Congress in 2010 to fund CER that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and healthcare decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.