TAYSHA GENE THERAPIES
RECEIVES RARE PEDIATRIC DISEASE
AND ORPHAN DRUG DESIGNATIONS
FOR SLC13A5 DEFICIENCY

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TESS Research Foundation

​​Our Goal is to find treatments for the genetic disease SLC13A5 Deficiency.

TESS Research Foundation is a 501(c)(3) tax exempt public charity. Our mission is to help families affected by SLC13A5 Deficiency. SLC13A5 Deficiency (aka Citrate Transporter Disorder) is a newly discovered genetic cause of epilepsy, and as such, TESS Research Foundation is building a patient-centered network from the ground up. We are determined to diagnose, treat, and ultimately cure SLC13A5 Deficiency. We do this by funding cutting-edge research and connecting families, doctors, and researchers.

A Day in the Life of a Family Living with SLC13A5 - Grover Family

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Maureen Grover and her husband, Hans, have three children, Landon,…

Different - A Memoir by Lily About Her Sister, Tessa

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Hi my name is Lily and I am 11 years old. My siblings, Tessa…

The Nye Family's Experience with Citrate Transporter Disorders and SLC13A5

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by Kim Nye My husband, Zach, and I live in Menlo Park, California…

Introducing the TESS Research Foundation Blog! 

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We are excited to bring you more voices from our TESS Community.…

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Tax Information

TESS Research Foundation

A 501(c)(3) nonprofit corporation

Tax ID Number: 47-3108868

Treatments for Epilepsy and Symptoms of SLC13A5

Contact Information

Kimberly Nye
655 Oak Grove Ave #53
Menlo Park, CA 94026

(650) 521-2279

E-Mail Kim