TAYSHA GENE THERAPIES
RECEIVES RARE PEDIATRIC DISEASE
AND ORPHAN DRUG DESIGNATIONS
FOR SLC13A5 DEFICIENCY

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TESS Research Foundation

​​Our Goal is to find treatments for the genetic disease SLC13A5 Deficiency.

TESS Research Foundation is a 501(c)(3) tax exempt public charity. Our mission is to help families affected by SLC13A5 Deficiency. SLC13A5 Deficiency (aka Citrate Transporter Disorder) is a newly discovered genetic cause of epilepsy, and as such, TESS Research Foundation is building a patient-centered network from the ground up. We are determined to diagnose, treat, and ultimately cure SLC13A5 Deficiency. We do this by funding cutting-edge research and connecting families, doctors, and researchers.

Colton's Superhero Story

Brayden's Superhero Story

Jackson's Superhero Story

Alaina's Superhero Story

A Day in the Life of a Family Living with SLC13A5 - Prestine/Pae Family

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Erika and Andrew are the parents of Ellie, who has SLC13A5 Deficiency. Our…

Shopping for Kids of All Abilities

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By: Kim Nye - Mom to four great kids, ages 6 to 15. The holidays…

Three Fun Crafts For Everyone

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By: Lily N. Hi my name is Lily, and I am 12 years old. Two…

A Day in the Life of a Family Living with SLC13A5 - Vattikuti Family

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Prasad and Anu are the parents of Sanjitha, their daughter, and…

Tax Information

TESS Research Foundation

A 501(c)(3) nonprofit corporation

Tax ID Number: 47-3108868

Treatments for Epilepsy and Symptoms of SLC13A5

Contact Information

Kimberly Nye
655 Oak Grove Ave #53
Menlo Park, CA 94026

(650) 521-2279

E-Mail Kim