Meet Lee Scheuer, TESS Board of Directors Member

Meet Lee Scheuer, TESS Board of Directors Member

Q: How did you get involved with TESS?

A: I learned of Tessa’s struggles with seizures when she was a newborn. Shortly after Colton’s birth, Kim Nye shared what she was doing to try to find answers for her children, and I realized we needed to get the community involved in caring for and helping to find answers. My wife and I provided seed money to help launch TESS Research Foundation, and I later became one of TESS’ founding board members. My goal continues to be to help bring people together to support the cause; after all, this disorder could affect any of our children.

Q: What inspires you to contribute your time and skills as a director on TESS’ board?

A: Without a doubt, I am inspired by Kim Nye. She is one of the brightest people I have ever known. Under her leadership, TESS is supporting families and is successfully seeking to understand the disease with the goal of a resolution and a cure.

Q: What is the best thing about being part of this community?

A: Helping other people. TESS is the most beautiful community because everyone involved is looking beyond themselves to solve a very serious issue. I can’t get enough of TESS Research Foundation. There is a lot of kindness, we go to the edge to try to do things that will improve kids’ lives, and we learn from our mistakes. It’s hard work but also energizing to believe there can be a positive outcome.

Q: How can others help make a difference for children and families with SLC13A5 Epilepsy?

A: Our goal is to resolve the underlying issue. I am not a scientist, but I know the science that will help our kids is out there. Unfortunately, what it takes to make it happen is finances. Our grantees and research partners have the knowledge, experience, and desire to help children with this disorder become healthier. And every one of us can learn a little about this disorder, spread awareness, and make a financial contribution. I think it’s exciting – our setbacks have been minor in comparison to our successes. It’s easy to join the cause.

Would you like to make a donation in honor of Lee?