Kimberly Nye, Executive Director
Kim is the president and co-founder of the TESS Research Foundation, a 501(c)(3) public charity that aims to find better treatment options and ultimately a cure for SLC13A5 Deficiency.
Kim holds a BA from Princeton University where she graduated magna cum laude and Phi Beta Kappa. She did a postbac at Oxford University. Over the last decade Kim has been involved with the pediatric neurology and medical genetics community in the United States. She is currently on the Steering Committee for the Rare Epilepsy Network (REN), a member of the Epilepsy Leadership Council, a Lay Reviewer for Citizens United for Research in Epilepsy (CURE), and a Reviewer for the Epilepsy Foundation’s Shark Tank Competition. She is a current Chan Zuckerberg Initiative Rare As One grantee.
Kim lives in California with her husband, Zach, and their four kids. Two of their children have SLC13A5 Deficiency, a severe form of epilepsy. As the mother of two children with epilepsy, Kim has witnessed 100,000s of seizures—a claim she hopes fewer moms will be able to make five years from now.
Emily Hsu, Operations Manager
Before becoming operations manager for TESS Research Foundation, Emily had been volunteering for TESS since before their founding in 2015. She began as the Foundation’s webmaster and has since taken on several other roles for the organization, including working as an admin, as a database manager, and as a producer of educational outreach videos. Emily has a BA in English from Bryn Mawr College. She can be reached here.
Cat Gasol, MA, Director of Communications
Catherine is the Director of Communications for TESS Research Foundation. She has a work background in Communications, Sales, Business and Marketing and a Master’s Degree in Communication Management from University of Southern California. She is the aunt of two children with SLC13A5 Deficiency and knows how devastating this disease is for families. Catherine is determined to help raise awareness, connect families and find a cure.
Nicole Windisch, Family Outreach
Nicole lives in New York with her husband, Rich and their 3 kids, James, Matthew and Meredith. Meredith has the SLC13A5 mutation. Nicole found the TESS Research Foundation while researching Meredith’s condition. Since then, she has taken an active role in raising awareness and fundraising. Nicole created our silicone bracelet fundraiser and is determined to help find a cure.
Tammy Wester, Community Outreach
Tammy heads our community outreach and volunteer program. She has been with TESS Research Foundation since it started, and she is the queen of organization. In addition to raising awareness at community events, she spearheads our snail mail communications.