We are STRONGER together

Family and Community Advisors

Celeste McDonnell

Celeste has 5 children, 2 step-children, and 11 grandchildren. Two of her grandchildren have been diagnosed with SLC13A5. Celeste holds a BA from University of Oregon and a Masters in Education from Lewis and Clark. Early in her career, she worked as a special education teacher. Celeste is determined to help improve the lives of those living with the SLC13A5 disease.

Maureen Grover

Maureen has 3 children, Landon (9), Brady (8) and Alaina (5). Brady and Alaina have been diagnosed with the SLC13a5 mutation. Her family is from sunny Florida and they spend much of their time on the soccer field or by the pool. As a family they have traveled across the country for answers, treatment and research.

Prasad Vattikuti

Prasad Vattikuti lives in Texas with his wife and 2 young children who have SLC13A5 mutations.

Lily Nye

Lily is 13 and the creator of our TESS Coloring Pages. She has three siblings, two of whom have SLC13A5 Epilepsy.

Maggie Nye

Maggie is 10 and the TESS Reporter. She has three siblings, two of whom have SLC13A5 Epilepsy.

Stephen Windisch

Stephen is a rising senior at Boston College taking pre-med. He is also Meredith Windisch’s uncle and very interested in helping children affected by SLC13A5 Epilepsy. Stephen will be summarizing and simplifying the lengthy research publications about SLC13A5 so we can better understand the information.