We are STRONGER together

Family and Community Advisors

Celeste McDonnell

Celeste has 5 children, 2 step-children, and 11 grandchildren. Two of her grandchildren have been diagnosed with SLC13A5. Celeste holds a BA from University of Oregon and a Masters in Education from Lewis and Clark. Early in her career, she worked as a special education teacher. Celeste is determined to help improve the lives of those living with the SLC13A5 disease.

Maureen Grover

Maureen has 3 children, Landon (9), Brady (8) and Alaina (5). Brady and Alaina have been diagnosed with the SLC13a5 mutation. Her family is from sunny Florida and they spend much of their time on the soccer field or by the pool. As a family they have traveled across the country for answers, treatment and research.

Prasad Vattikutti

Prasad Vattikutti lives in Texas with his wife and 2 young children who have SLC13A5 mutations.

Lily Nye

Lily is 13 and the creator of our TESS Coloring Pages. She has three siblings, two of whom have SLC13A5 Epilepsy.

Maggie Nye

Maggie is 10 and the TESS Reporter. She has three siblings, two of whom have SLC13A5 Epilepsy.

Family and Community Advisors Emeritus

William Nichols, MBA, CPA

Bill retired in 2000 as Treasurer of the William and Flora Hewlett Foundation, Menlo Park, California. Bill’s other endeavors included Associate Professor of Accounting and Finance at San Jose State University, Controller and Assistant Treasurer of Saga Corporation, Menlo Park, CA and Certified Public Accountant with Price Waterhouse in San Francisco, California and Sydney, Australia. Bill is a graduate of Stanford University with a degree in AB and an MBA. Bill has a wide range of experiences serving on numerous Board of Directors positions; currently he serves as Treasurer of the Lucile Packard Foundation for Childrens Health and Chair of Investment and Finance Committees, Avenidas, both of Palo Alto, California; past member of Channing House, Palo Alto, California and Trustee of the Investment Fund for Foundations, in Virginia. Bill is a Certified Public Accountant in the state of California and holds membership in Financial Executives Institute; Institute of Management Accountants and California State CPA Society.