News

Today, we are thrilled to share that CZI has awarded TESS an additional $150,000 and continued engagement with the RAO network (which now includes 50 patient-led organizations in the rare disease space) for another year! We are deeply grateful for CZI’s continuing generosity and unwavering support of TESS Research Foundation.

TESS Research Foundation has partnered with Uplifting Athletes, a nonprofit organization dedicated to serving the Rare Disease Community, to support young research investigators focused on rare genetic and rare muscular and neurological disorders. As part of this collaboration, Naomi Dirckx, PhD, from Johns Hopkins was recently selected by Uplifting Athletes as a member of its 2022 Young Investigator Draft Class and awarded a $20,000 unrestricted rare disease research grant.