November is Epilepsy awareness month. Epilepsy is one of the most common neurological disorders, affecting people of all ages, but a rare type of genetic epilepsy affects one local family. "Two of my grandchildren have...
TESS Research Foundation has been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds will support developing a patient-centered...
Just a few years ago, Moderna faced a chorus of doubts over whether its experimental mRNA technology would ever work well enough to become a medicine. After the $36 billion success of its Covid-19 vaccines,...
Our second Derby Day Fundraiser benefiting TESS Research Foundation, held on May 6 in the garden of Celeste McDonnell, was a great success...
Katie Couric: Yesterday was Rare Disease Day. As many as 7,000 rare diseases affect 400 million people globally. The vast majority are not well understood, and less than 5% have approved treatment — yet worldwide,...
CZI’s Rare As One Network grant partners are driving scientific breakthroughs to fight for the lives of their loved ones. Kim Nye spent a decade traveling the world seeking a diagnosis for her daughter, Tessa,...
Nasha Fitter didn’t have time. There had to be a better, faster way, she thought — not just for her daughter, who recently turned 7, but for other people with rare diseases. Fitter tapped her tech...
For the first decade of their daughter's life, Tessa Nye's parents desperately sought to find the cause of her hundreds of daily seizures. But after her brother Colton started having seizures shortly after birth, their...
