What’s it like to participate in an epilepsy drug trial? How do you find the right trial? What should you know before participating? And what can you do if the epilepsy is so rare that there are no trials? Clinical trials are the only way to bring new epilepsy drugs to the public, and those who participate are trailblazers, helping researchers lay the foundation for new therapies, improved medications, and better lives for their fellow epilepsy patients.
In the finale of our 4-part series exploring the drug development process, we look at clinical trials through the eyes of a participant. We speak with Kim Nye, mother of two children with epilepsy and founder of the Tess Research Foundation, about her experiences enrolling her children in epilepsy clinical trials. Kim provides the patient perspective on finding clinical trials, determining if a trial is right for you and your child, and understanding what will be expected as a participant throughout the trial.
Kim also shares advice for those who may not be able to find trials that focus on rare diseases. If you are interested in participating in clinical trials, this episode of Seizing Life will provide you with insights and advice from someone who’s been through multiple trials and continues to participate in order to push epilepsy research forward.