In Memoriam

Losing a loved one is an emotional journey that often leaves us feeling lost. We are hoping the below resources provide our community with the tools needed to help navigate this difficult journey. This is not...

We are deeply saddened to share the news of the loss of our beautiful TESS Superhero, Hailey, daughter to Stéphanie and Christopher, from Hawkesbury, Ontario, Canada. Hailey passed away due to complications from SLC13A5 Epilepsy...

Roos is a SLC13A5 Superhero. Here are a few fun facts Roos' family shared with us! Name: Roos. Age: 10. Homecountry: Netherlands. Roos loves to swim in the sea...

Aubrey is a SLC13A5 Superhero. Here are a few fun facts Aubrey's parents shared with us! Name: Aubrey Age: 3 Homeprovince: Ontario Aubrey is a total Daddy’s girl ...