General

Authors: This statement was modified with permission from a statement written by Veronica Hood, PhD at the Dravet Syndrome Foundation, with edits from Tanya Brown, PhD, Rachel Bailey, PhD, and Brenda Porter, MD, PhD There...

By: Kim Nye - Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family are always asking for gift ideas, especially for Tessa (15) and Colton (6)...

By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts...

We are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope this will help raise awareness about what it is like...