Losing a loved one is an emotional journey that often leaves us feeling lost. We are hoping the below resources provide our community with the tools needed to help navigate this difficult journey. This is not...
During this past May, I was fortunate to travel from Dallas to Los Angeles for the 26th American Society for Gene and Cell Therapy (ASGCT) annual meeting. This meeting presented the opportunity for me to...
Authors: This statement was modified with permission from a statement written by Veronica Hood, PhD at the Dravet Syndrome Foundation, with edits from Tanya Brown, PhD, Rachel Bailey, PhD, and Brenda Porter, MD, PhD There has...
Hi Kathryn! Please tell us a little about yourself and your medical journey thus far. Hi! My name is Kathryn, I’m from Medfield, MA and I’m currently a senior at Boston College studying biology and...
By: Kim Nye - Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family...
By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all...
We are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope...