General

Probably Genetic is a group of geneticists, engineers, and patients seeking to help people with rare diseases access genetic testing. The company has recently launched a no-cost genetic testing program for people with seizure or...

Losing a loved one is an emotional journey that often leaves us feeling lost. We are hoping the below resources provide our community with the tools needed to help navigate this difficult journey. This is not...

Authors: This statement was modified with permission from a statement written by Veronica Hood, PhD at the Dravet Syndrome Foundation, with edits from Tanya Brown, PhD, Rachel Bailey, PhD, and Brenda Porter, MD, PhD There has...

By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all...

We are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope...