Families

SLC13A5 Epilepsy affects not just individuals, but entire families. The following perspective, as told by Evelyn, TESS Superhero Lucas’s mom, aims to give insight into what it might be like to love and care for...

Nicole and Rich are the parents of Meredith (2-years-old), who has SLC13A5 Epilepsy. James (16-years-old) and Matthew (12-years-old) are Meredith’s older brothers. A Day in the Life Meredith is our little chickadee, as her daddy...

Maria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice is our rare pearl –...