Prasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help...
by Nicole Windisch Our daughter Meredith Grace was born on January 10, 2018. Within 12 hours, while Meredith was in the nursery, a nurse noticed she was losing oxygen. She was immediately taken to the NICU...
TESS Research Foundation Newsletter Read this Issue...
TESS Research Foundation Newsletter Read this Issue...
Deepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our epilepsy community and on neurological...
I wanted to take a moment to update everyone on the TESS Research Foundation’s accomplishments! Sometimes in this very fast-paced world we do not take the time to reflect on where we have been...
Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a...
