Tessa is a SLC13A5 Superhero. Here are a few fun facts: Age: 16 years old Hometown: Northern California, USA If it were up to Tessa, she would wear purple clothes from head to toe every...
Maria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice is our rare pearl –...
Erika and Andrew are the parents of Ellie, who has SLC13A5 Deficiency. Our days with Ellie (who is almost the big 4!) are typically filled with a lot of love, patience, and laughter. We like...
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By: Kim Nye - Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family...
By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all...
Prasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help...
by Nicole Windisch Our daughter Meredith Grace was born on January 10, 2018. Within 12 hours, while Meredith was in the nursery, a nurse noticed she was losing oxygen. She was immediately taken to the NICU...
