Age: 7 years old Hometown: Bay Area, CA Loves his big sisters and all his cousins Has enviously long eye lashes Loves all sorts of technology (especially phones that don't belong to him) Colton's Medical...

Brayden is a SLC13A5 Superhero. Here are a few fun facts Brayden's mom shared with us! Age: 13 Homestate: Florida Brady stood up for the first time when he was 4 and hasn’t stopped trying...

Jackson is a SLC13A5 Superhero. Here are a few fun facts Jackson's mom shared with us! Age: 1 Homestate: Oklahoma Jackson is the happiest baby you’ll ever meet! No matter what is going on in...

Q: What is your role at TESS Research Foundation? I am the Communications Director for TESS. I help manage our social media accounts (Facebook, Instagram, Twitter), create content, organize events and campaigns, and try to...

Alaina is a SLC13A5 Superhero. Here are a few fun facts Alaina's mom shared with us! Age: 10 Hometown: Florida Alaina loves dogs and immediately laughs when they come near her. Alaina loves her 2...

Nicole and Rich are the parents of Meredith (2-years-old), who has SLC13A5 Epilepsy. James (16-years-old) and Matthew (12-years-old) are Meredith’s older brothers. A Day in the Life Meredith is our little chickadee, as her daddy...