November is Epilepsy awareness month. Epilepsy is one of the most common neurological disorders, affecting people of all ages, but a rare type of genetic epilepsy affects one local family. "Two of my grandchildren have...
Klaire is a SLC13A5 Superhero. Here are a few fun facts Klaire's family shared with us! Name: Klaire Age: 2 Home country: United States of America Her first name is actually Ella after her great-great grandmother. Klaire is her...
TESS Research Foundation partners with many researchers in an effort to obtain a better understanding of the many different components of SLC13A5 Epilepsy. The following perspective, as told by Dr. Naomi Dirckx, Research Associate at...
Rare disease impacts everyone, and there is a tendency to believe that “I don’t know what is in my cards. Maybe I should help others.” I believe that sometimes disabilities create abilities – the ability...
TESS is the most beautiful community because everyone involved is looking beyond themselves to solve a very serious issue. I can’t get enough of TESS Research Foundation. There is a lot of kindness, we go...
What Is the Blood-Brain Barrier? Our brains are the most complex organs that we have. Our brains perform functions that impact every single thing that goes on inside our bodies during the entirety of our lives,...
Bernardo is a SLC13A5 Superhero. Here are a few fun facts Bernardo's family shared with us! Name: Bernardo Age: 23 Home country: Brazil Bernardo loves to dance! He enjoys listening to music. Bernardo is always on the move. He loves a house...
When I heard the diagnosis there were, of course, mixed emotions: relief to know that the disorder was identified, uncertainty about what it really meant, apprehension about how Amber and Michael and our family would...
The diagnosis was a bit further ‘down the line’ but we knew he was a sick baby. What did the diagnosis mean? What was his future? Would he walk; talk; go to school; grow up;...