Leonardo is a SLC13A5 Superhero. Here are a few fun facts Leonardo's family shared with us! Name: Leonardo, Age: 3, Homecountry: Brazil, Favorite cartoon: Bob the Train....
What do you get when you bring together mint juleps, fancy hats and bowties, a live viewing of the Kentucky Derby, and a garden full of people who want to make a difference in the...
Every visit to the doctor creates a new medical record. There’s documentation of the visit, the medications taken, medical procedures, and so much more. Medical records allow our doctors to track important information about their...
Marcela is a SLC13A5 Superhero. Here are a few fun facts Marcela's family shared with us! Name: Marcela. Age: 24. Homecountry: Brazil. She loves lipstick, perfume and massages!...
Mattia is a SLC13A5 Superhero. Here are a few fun facts Mattia's parents shared with us! Name: Mattia. Age: 8. Homecountry: Italy. His family describes him as a sunny child, always laughing and smiling even...
In our last two blog posts in this series we covered the structure of a research article (part 1) and tips for critically reading a research article (part 2). In part 3 of this series,...
Rowan is a SLC13A5 Superhero. Here are a few fun facts Rowan's parents shared with us! Name: Rowan, Age: Almost a year old, Homecountry: Canada. Rowan shares his mom and dad's love for musicals, his...
One of the biggest questions we have here at TESS is, “how does SLC13A5 Epilepsy lead to seizures and other neurological problems?” One way researchers are currently tackling this question is using a technique called...
Today, we are thrilled to share that CZI has awarded TESS an additional $150,000 and continued engagement with the RAO network (which now includes 50 patient-led organizations in the rare disease space) for another year!...