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A Day in the Life of a Family Living with SLC13A5 – Vattikuti Family

Prasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids […]

The Windisch Family’s Experience with SLC13A5 Deficiency

by Nicole Windisch Our daughter Meredith Grace was born on January 10, 2018. Within 12 hours, while Meredith was in the nursery, a nurse noticed she was losing oxygen. She […]

How TESS Impacts the Wider Medical Community–by Deepti Dubey, PhD

Deepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our […]

A Day in the Life of a Family Living with SLC13A5 – Grover Family

Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with […]

Different – A Memoir by Lily About Her Sister, Tessa

Hi my name is Lily and I am 11 years old. My siblings, Tessa and Colton both have SLC13A5 Deficiency, which is more commonly known as seizures. I love both […]