SLC13A5 Epilepsy affects not just individuals, but friends and families as well. The following perspective, as told by Laura, TESS Superhero Meredith's nurse, aims to give insight into what it might be like to love...
Gene editing is a growing field of medical biology in which scientists attempt to make changes to the DNA to permanently fix harmful disease-causing mutations. CRISPR is an immensely popular tool in this field due...
Age: 7 years old Hometown: Bay Area, CA Loves his big sisters and all his cousins Has enviously long eye lashes Loves all sorts of technology (especially phones that don't belong to him) Colton's Medical...
A little rain couldn’t keep the TESS community from coming together, dressed to the nines with fascinators and bow ties on Saturday, May 4, to raise more than $200,000 for scientific research and family support...
The most important missing piece of information is Why -- why does an absence of the citrate transporter on the cell surface have such a profound effect on a number of developing and mature systems?...
SLC13A5 Epilepsy affects not just individuals, but friends and families as well. The following perspective, as told by Angela, TESS Superhero Rowan’s friend, aims to give insight into what it might be like to love...
Brayden is a SLC13A5 Superhero. Here are a few fun facts Brayden's mom shared with us! Age: 13 Homestate: Florida Brady stood up for the first time when he was 4 and hasn’t stopped trying...
After 20 years in rare disease, I continue to be motivated by the tremendous unmet need of children impacted by severe, destructive, and life threatening illnesses. The impact on the patients and their families is...
SLC13A5 Epilepsy affects not just individuals, but entire families. The following perspective, as told by Kate, TESS Superhero Ellie's grandma, aims to give insight into what it might be like to love and care for...