Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
A Day in the Life of a Family Living with SLC13A5 – Geslin Family
/0 Comments/in Families /by primaryMaria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice […]
A Day in the Life of a Family Living with SLC13A5 – Prestine/Pae Family
/1 Comment/in Families /by primaryErika and Andrew are the parents of Ellie, who has SLC13A5 Deficiency. Our days with Ellie (who is almost the big 4!) are typically filled with a lot of love, […]
Shopping for Kids of All Abilities
/0 Comments/in Families /by primaryBy: Kim Nye – Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My […]
Three Fun Crafts For Everyone
/3 Comments/in Families /by primaryBy: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time […]
A Day in the Life of a Family Living with SLC13A5 – Vattikuti Family
/1 Comment/in Families /by primaryPrasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids […]