By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all...

by Nicole Windisch Our daughter Meredith Grace was born on January 10, 2018. Within 12 hours, while Meredith was in the nursery, a nurse noticed she was losing oxygen. She was immediately taken to the NICU...

Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a...

Pau Gasol Launches #OneDayOneDream Sweepstakes Win A Chance to watch the Spurs vs Warriors, meet Pau Gasol and enjoy the ultimate NBA experience at the AT&T Center March 5, 2018, (San Antonio, TX) – On...