Age: 7 years old Hometown: Bay Area, CA Loves his big sisters and all his cousins Has enviously long eye lashes Loves all sorts of technology (especially phones that don't belong to him) Colton's Medical...

Q: What is your role at TESS Research Foundation? I am the Communications Director for TESS. I help manage our social media accounts (Facebook, Instagram, Twitter), create content, organize events and campaigns, and try to...

Nicole and Rich are the parents of Meredith (2-years-old), who has SLC13A5 Epilepsy. James (16-years-old) and Matthew (12-years-old) are Meredith’s older brothers. A Day in the Life Meredith is our little chickadee, as her daddy...

Maria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice is our rare pearl –...