My work is mostly to help keep the parents connected and involved with each other and with TESS Research Foundation...
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By: Kim Nye - Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family...
I am a member of the the TESS Scientific Advisory Board. This Board helps set the research agenda for the organization...
I am a part of the Family and Community Advisors group. I have two children with SLC13A5 Deficiency, so I know how critical our TESS mission...
Community outreach helps raise awareness about epilepsy and how many different types and causes of seizures there are out there. Hopefully, we help erase any fear and stigma about epilepsy...
I am a member of the TESS Board of Directors, the formal governing body of the organization. We make the final decisions on our roadmap to a cure, assist with fundraising, and help advance our...
By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all...
