Jackson is a SLC13A5 Superhero. Here are a few fun facts Jackson's mom shared with us! Age: 1 Homestate: Oklahoma Jackson is the happiest baby you’ll ever meet! No matter what is going on in...
Q: What is your role at TESS Research Foundation? I am the Communications Director for TESS. I help manage our social media accounts (Facebook, Instagram, Twitter), create content, organize events and campaigns, and try to...
Alaina is a SLC13A5 Superhero. Here are a few fun facts Alaina's mom shared with us! Age: 10 Hometown: Florida Alaina loves dogs and immediately laughs when they come near her. Alaina loves her 2...
Nicole and Rich are the parents of Meredith (2-years-old), who has SLC13A5 Epilepsy. James (16-years-old) and Matthew (12-years-old) are Meredith’s older brothers. A Day in the Life Meredith is our little chickadee, as her daddy...
I work with the Scientific Advisory Board (scientists, clinicians and biotechnology entrepreneurs who work to advance research on SLC13A5 Epilepsy)...
Tessa is a SLC13A5 Superhero. Here are a few fun facts: Age: 16 years old Hometown: Northern California, USA If it were up to Tessa, she would wear purple clothes from head to toe every...
Maria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice is our rare pearl –...
I work to make sure that the information we have on patients and their families, such as their medical data, is correct and up-to-date...
Erika and Andrew are the parents of Ellie, who has SLC13A5 Deficiency. Our days with Ellie (who is almost the big 4!) are typically filled with a lot of love, patience, and laughter. We like...