Rowan is a SLC13A5 Superhero. Here are a few fun facts Rowan's parents shared with us! Name: Rowan, Age: Almost a year old, Homecountry: Canada. Rowan shares his mom and dad's love for musicals, his...

One of the biggest questions we have here at TESS is, “how does SLC13A5 Epilepsy lead to seizures and other neurological problems?” One way researchers are currently tackling this question is using a technique called...

Today, we are thrilled to share that CZI has awarded TESS an additional $150,000 and continued engagement with the RAO network (which now includes 50 patient-led organizations in the rare disease space) for another year!...

TESS Research Foundation has partnered with Uplifting Athletes, a nonprofit organization dedicated to serving the Rare Disease Community, to support young research investigators focused on rare genetic and rare muscular and neurological disorders. As part...

Halldóra María is a SLC13A5 Superhero. Here are a few fun facts Halldóra María’s parents shared with us! Name: Halldóra María, Age: 8, Homecountry: Iceland, Halldóra loves toasted bread with butter and cheese. Sometimes she...

Alice is a SLC13A5 Superhero. Here are a few fun facts Alice’s parents shared with us! Name: Alice Geslin, Age: 6, Homecountry: Luxembourg. Alice is simply a blessing, an ever smiling little girl, very sociable...