Marcela is a SLC13A5 Superhero. Here are a few fun facts Marcela's family shared with us! Name: Marcela. Age: 24. Homecountry: Brazil. She loves lipstick, perfume and massages!...

Mattia is a SLC13A5 Superhero. Here are a few fun facts Mattia's parents shared with us! Name: Mattia. Age: 8. Homecountry: Italy. His family describes him as a sunny child, always laughing and smiling even...

Rowan is a SLC13A5 Superhero. Here are a few fun facts Rowan's parents shared with us! Name: Rowan, Age: Almost a year old, Homecountry: Canada. Rowan shares his mom and dad's love for musicals, his...

One of the biggest questions we have here at TESS is, “how does SLC13A5 Epilepsy lead to seizures and other neurological problems?” One way researchers are currently tackling this question is using a technique called...

Today, we are thrilled to share that CZI has awarded TESS an additional $150,000 and continued engagement with the RAO network (which now includes 50 patient-led organizations in the rare disease space) for another year!...

TESS Research Foundation has partnered with Uplifting Athletes, a nonprofit organization dedicated to serving the Rare Disease Community, to support young research investigators focused on rare genetic and rare muscular and neurological disorders. As part...

Halldóra María is a SLC13A5 Superhero. Here are a few fun facts Halldóra María’s parents shared with us! Name: Halldóra María, Age: 8, Homecountry: Iceland, Halldóra loves toasted bread with butter and cheese. Sometimes she...