SLC13A5 Epilepsy International Awareness Day

May 13 is SLC13A5 Epilepsy International Awareness Day! The goal of this annual virtual event is to raise awareness for the international community affected by SLC13A5 Epilepsy. We hope all affected families, researchers, fellows, health professionals, industry, sponsors and friends will help us spread awareness about this devastating disorder.


Get Social for SLC13A5 Epilepsy.

Say Thanks for Caring for a SLC13A5 Epilepsy Loved One.

  • Take a picture and post it to social media or send it to us at Use the hashtags #SLC13A5Awareness and #TESSResearch.

Raise Money for SLC13A5 Epilepsy Research.

  • During the month of May, plan a Facebook fundraiser or another event to raise funds for SLC13A5 Epilepsy Research.
  • Buy some new TESS merchandise.
  • Organize a bake sale, skip your coffee and donate to TESS, plan a cook off, host a happy hour – do what you already do but do it for TESS. All donations support SLC13A5 Epilepsy research toward a cure.

Show Your SLC13A5 Epilepsy Pride.

  • Wear something purple.
  • Print the TESS flyer and post a photo of your TESS loved one with family and friends. Use the hashtags: #SLC13A5Awareness and #TESSResearch. We also have a digital/image version of the flyer: Page 1, Page 2.

Watch and Share Our Video.

  • Learn about TESS Superhero Ellie, SLC13A5 research, and her family’s hopes for the future.

Remember, while May 13 is SLC13A5 Epilepsy International Awareness Day – 

you can help spread awareness all year long with education, fundraisers, and more.