Author: tess

Authors: This statement was modified with permission from a statement written by Veronica Hood, PhD at the Dravet Syndrome Foundation, with edits from Tanya Brown, PhD, Rachel Bailey, PhD, and Brenda Porter, MD, PhD There has...

Jaylon is a SLC13A5 Superhero. Here are a few fun facts Jaylon's mom shared with us! Age: 15 years old Hometown: Port Arthur, Texas Favorite activity: going to basketball games Second favorite activity: being at...

Yavi is a SLC13A5 Superhero. Here are a few fun facts Yavi's parents shared with us! Age: 2 Hometown: Ridgefield, WA Siblings: He has 3 sisters and 2 brothers. Favorite food: He loves most food,...

Abhi is a SLC13A5 Superhero. Here are a few fun facts Abhi's parents shared with us! Age: 13 Hometown: Austin, TX Personality traits: Happy, funny and a little naughty! Likes: Messing with people, being competitive...

What’s it like to participate in an epilepsy drug trial? How do you find the right trial? What should you know before participating? And what can you do if the epilepsy is so rare that...