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SLC13A5 Epilepsy

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Learn how TESS and other CZI Rare As One Network grant partners are driving scientific breakthroughs to fight for the lives of their loved ones.

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Learn more about the Nye Family’s journey to diagnosis and the founding of TESS Research Foundation.

María Rós’ Superhero Story
Bernharð’s Superhero Story
Lucas’ Superhero Story
All About Genetic Sequencing

Science SimplifiedAll About Genetic Sequencing

Katie Couric is a champion for TESS and raising awareness for rare diseases

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How Patients With Rare Diseases Are Accelerating Groundbreaking Research for Their Communities

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We are committed to finding a cure for SLC13A5 Epilepsy.

You make it possible.

SLC13A5 Epilepsy, also known as SLC13A5 Deficiency or Citrate Transporter Disorder, is a newly discovered genetic cause of epilepsy. Through community support and your generosity, we are helping children affected by SLC13A5 Epilepsy through cutting-edge, patient-centered research, and by connecting families, doctors, and researchers to improve diagnosis and care – and ultimately find a cure.