San Francisco Business Times features TESS Executive Director & Founder Kim Nye! Read here.

Driving Research to Cure
SLC13A5 Epilepsy

Join the TESS Community: Subscribe for updates on the latest research, treatments, and news.

SIGN UP

We are Here for YOU

NEWLY
DIAGNOSED

PHYSICIAN
RESOURCES

RESEARCHER
TOOLKIT

GET
INVOLVED!

NEW!

Learn about TESS Superhero Ellie, SLC13A5 research, and her family’s hopes for the future.

Learn More

Learn more about the Nye Family’s journey to diagnosis and the founding of TESS Research Foundation.

Milosz’s Superhero Story
Indy’s Superhero Story
María Rós’ Superhero Story
What are ICD codes and how ICD codes are used in healthcare and beyond

Science SimplifiedWhat are ICD codes and how ICD codes are...

All About Genetic Sequencing

Science SimplifiedAll About Genetic Sequencing

Katie Couric is a champion for TESS and raising awareness for rare diseases

NewsKatie Couric is a champion for TESS and raising...

We are committed to finding a cure for SLC13A5 Epilepsy.

You make it possible.

SLC13A5 Epilepsy, also known as SLC13A5 Deficiency or Citrate Transporter Disorder, is a newly discovered genetic cause of epilepsy. Through community support and your generosity, we are helping children affected by SLC13A5 Epilepsy through cutting-edge, patient-centered research, and by connecting families, doctors, and researchers to improve diagnosis and care – and ultimately find a cure.