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SLC13A5 Epilepsy

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Learn about TESS Superhero Ellie, SLC13A5 research, and her family’s hopes for the future.

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Learn more about the Nye Family’s journey to diagnosis and the founding of TESS Research Foundation.

César’s Superhero Story
Mariam’s Superhero Story
In Memoriam: TESS Superhero Hailey
Rob, Julie, and Rowan: A Grandparents’ Perspective – Part One

FamiliesRob, Julie, and Rowan: A Grandparents’...

Meet Kevin McDonnell, TESS Board of Directors Treasurer

TESS TeamMeet Kevin McDonnell, TESS Board of Directors...

Blood-Brain Barrier Part 1

Science SimplifiedBlood-Brain Barrier Part 1

We are committed to finding a cure for SLC13A5 Epilepsy.

You make it possible.

SLC13A5 Epilepsy, also known as SLC13A5 Deficiency or Citrate Transporter Disorder, is a newly discovered genetic cause of epilepsy. Through community support and your generosity, we are helping children affected by SLC13A5 Epilepsy through cutting-edge, patient-centered research, and by connecting families, doctors, and researchers to improve diagnosis and care – and ultimately find a cure.